The CLET (Collage Life Story Elicitation Technique) is a protocol to support individuals in their efforts to create their own life story. The methodological approach used in this study included structured interviews embedded within the Collage Life Story Elicitation Technique. This study introduces a method with which it was possible to collect differentiated data from individuals with CHARGE Syndrome themselves through a guided creation of pictorial collages and a specialized interview technique based on their collages. However, identity research shifts the paradigm to the individual and their unique personality, which encourages professionals to apply their support or services to the human being rather than the disability. A review of the literature demonstrates that the vast majority of research regarding CHARGE Syndrome focuses on the medical, developmental, and family structures. This case study focuses on the development of identity of individuals with CHARGE Syndrome which is of concern to individuals with CHARGE Syndrome, their parents and the various professionals that provide support and service. It is recognized as the most common cause of congenital deafblindness. Department for Deafblindness, Institute for Special Needs, University of Education Heidelberg, Heidelberg, GermanyĬHARGE Syndrome is a genetic syndrome with a recognized pattern of features, and involves extensive medical and physical challenges.
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